{"id":68458,"date":"2024-09-05T22:50:14","date_gmt":"2024-09-06T01:50:14","guid":{"rendered":"https:\/\/www.chavantesnoticia.com.br\/?p=68458"},"modified":"2024-09-05T22:50:15","modified_gmt":"2024-09-06T01:50:15","slug":"lamentavel-decisao-do-stf-impede-que-crianca-tenha-acesso-a-remedio-de-r17-milhoes","status":"publish","type":"post","link":"https:\/\/www.chavantesnoticia.com.br\/?p=68458","title":{"rendered":"LAMENT\u00c1VEL DECIS\u00c3O DO STF IMPEDE QUE CRIAN\u00c7A TENHA ACESSO A REM\u00c9DIO DE R$17 MILH\u00d5ES"},"content":{"rendered":"<div class=\"xdj266r x11i5rnm xat24cr x1mh8g0r x1vvkbs x126k92a\">\n<div dir=\"auto\"><span style=\"color: initial;\">J\u00e1 estava tudo certo para Lorenzo Arag\u00e3o, de 4 anos, receber a dose \u00fanica de Elevidys, medicamento que pode interromper os sintomas da Distrofia Muscular de Duchenne (DMD). A doen\u00e7a rara causa degenera\u00e7\u00e3o progressiva dos m\u00fasculos, inclusive dos card\u00edacos e do sistema nervoso. A primeira inst\u00e2ncia da Justi\u00e7a Federal obrigou que a Uni\u00e3o fornecesse o medicamento, mas, antes de receber, uma decis\u00e3o do ministro Gilmar Mendes, do Supremo Tribunal Federal (STF), suspendeu todas as liminares.<\/span><\/div>\n<\/div>\n<div class=\"x11i5rnm xat24cr x1mh8g0r x1vvkbs xtlvy1s x126k92a\">\n<div dir=\"auto\">Enquanto aguarda, Lorenzo sente dores todos os dias e perde o movimento da perna. Para andar, ele s\u00f3 consegue com a ponta dos p\u00e9s. Em 4 de julho, os familiares da crian\u00e7a puderam comemorar a decis\u00e3o da 14\u00aa Vara C\u00edvel Federal de S\u00e3o Paulo, obrigando o fornecimento do rem\u00e9dio. Essa \u00e9 a \u00fanica alternativa para estagnar a doen\u00e7a e, assim, oferecer qualidade de vida ao menino. A Uni\u00e3o teria 30 dias \u00fateis para entregar o rem\u00e9dio.<\/div>\n<\/div>\n<div class=\"x11i5rnm xat24cr x1mh8g0r x1vvkbs xtlvy1s x126k92a\">\n<div dir=\"auto\">A fam\u00edlia contou cada um desses dias. O prazo era 20 de agosto e o Governo Federal atrasou. A defesa do menino se preparava para cobrar judicialmente pela entrega do medicamento, mas foi surpreendida pela decis\u00e3o do ministro. Em 28 de agosto, Gilmar Mendes atendeu a um pedido da Uni\u00e3o e suspendeu todas as ordens para a compra do medicamento. Dias depois, o ministro voltou atr\u00e1s, pelo menos em parte da decis\u00e3o. Em 3 de setembro, ele decidiu que apenas crian\u00e7as com 7 anos que j\u00e1 tivessem liminar poderiam receber.<\/div>\n<\/div>\n<div class=\"x11i5rnm xat24cr x1mh8g0r x1vvkbs xtlvy1s x126k92a\">\n<div dir=\"auto\">Lorenzo tem apenas 4 anos. Na corrida contra o tempo, ele n\u00e3o atingiu a idade que o STF considerou apta a receber. A fam\u00edlia est\u00e1 desesperada. \u201cO meu filho quer brincar, ele n\u00e3o consegue brincar. Est\u00e3o tirando esse direito de ele poder viver, poder brincar, ele poder correr sendo que ele s\u00f3 precisa da medica\u00e7\u00e3o\u201d, lamentou a m\u00e3e.<\/div>\n<\/div>\n<div class=\"x11i5rnm xat24cr x1mh8g0r x1vvkbs xtlvy1s x126k92a\">\n<div dir=\"auto\">Que Deus ajude o pequeno Lorenzo<\/div>\n<\/div>\n<div class=\"x11i5rnm xat24cr x1mh8g0r x1vvkbs xtlvy1s x126k92a\">\n<div dir=\"auto\"><span class=\"html-span xdj266r x11i5rnm xat24cr x1mh8g0r xexx8yu x4uap5 x18d9i69 xkhd6sd x1hl2dhg x16tdsg8 x1vvkbs\"><a class=\"x1i10hfl xjbqb8w x1ejq31n xd10rxx x1sy0etr x17r0tee x972fbf xcfux6l x1qhh985 xm0m39n x9f619 x1ypdohk xt0psk2 xe8uvvx xdj266r x11i5rnm xat24cr x1mh8g0r xexx8yu x4uap5 x18d9i69 xkhd6sd x16tdsg8 x1hl2dhg xggy1nq x1a2a7pz x1sur9pj xkrqix3 x1fey0fg x1s688f\" tabindex=\"0\" role=\"link\" href=\"https:\/\/www.facebook.com\/chavantesnoticia.com.br?__cft__[0]=AZXM3wxPdswTEUP0jCKVY-bzloF6K0y1zybUnQZbb18ebn-xyNwoW3xIFrb0KyIY0fh2QfHdCHMOf2uJSyiRaNjj_Lhl-bbvikG0PUy6N3YhAlg_xHP-MxEVKqQa2M0eiwa750XviNQI9VgxOhIfTvIYDoJWg7VljkyAw--Mk5bOT38XsNp-T7gUjvvhtA3awDynCvUiLKKuiIHhaFWOJZbI&amp;__tn__=-]K-R\"><span class=\"xt0psk2\">Chavantes Not\u00edcia<\/span><\/a><\/span><\/div>\n<div dir=\"auto\">Fonte:Metr\u00f3poles<\/div>\n<\/div>\n","protected":false},"excerpt":{"rendered":"<p>J\u00e1 estava tudo certo para Lorenzo Arag\u00e3o, de 4 anos, receber a dose \u00fanica de Elevidys, medicamento que<\/p>\n","protected":false},"author":1,"featured_media":68459,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_monsterinsights_skip_tracking":false,"footnotes":""},"categories":[124,209],"tags":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v22.6 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>LAMENT\u00c1VEL DECIS\u00c3O DO STF IMPEDE QUE CRIAN\u00c7A TENHA ACESSO A REM\u00c9DIO DE R$17 MILH\u00d5ES - Chavantes Not\u00edcia<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.chavantesnoticia.com.br\/?p=68458\" \/>\n<meta property=\"og:locale\" content=\"pt_BR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LAMENT\u00c1VEL DECIS\u00c3O DO STF IMPEDE QUE CRIAN\u00c7A TENHA ACESSO A REM\u00c9DIO DE R$17 MILH\u00d5ES - Chavantes Not\u00edcia\" \/>\n<meta property=\"og:description\" content=\"J\u00e1 estava tudo certo para Lorenzo Arag\u00e3o, de 4 anos, receber a dose \u00fanica de Elevidys, medicamento que\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.chavantesnoticia.com.br\/?p=68458\" \/>\n<meta property=\"og:site_name\" content=\"Chavantes Not\u00edcia\" \/>\n<meta property=\"article:published_time\" content=\"2024-09-06T01:50:14+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2024-09-06T01:50:15+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.chavantesnoticia.com.br\/wp-content\/uploads\/2024\/09\/458610017_1028202582645393_189245099529832247_n.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"392\" \/>\n\t<meta property=\"og:image:height\" content=\"377\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Chavantes Not\u00edcia\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Escrito por\" \/>\n\t<meta name=\"twitter:data1\" content=\"Chavantes Not\u00edcia\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. tempo de leitura\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutos\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/www.chavantesnoticia.com.br\/?p=68458\",\"url\":\"https:\/\/www.chavantesnoticia.com.br\/?p=68458\",\"name\":\"LAMENT\u00c1VEL DECIS\u00c3O DO STF IMPEDE QUE CRIAN\u00c7A TENHA ACESSO A REM\u00c9DIO DE R$17 MILH\u00d5ES - Chavantes Not\u00edcia\",\"isPartOf\":{\"@id\":\"https:\/\/www.chavantesnoticia.com.br\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/www.chavantesnoticia.com.br\/?p=68458#primaryimage\"},\"image\":{\"@id\":\"https:\/\/www.chavantesnoticia.com.br\/?p=68458#primaryimage\"},\"thumbnailUrl\":\"https:\/\/www.chavantesnoticia.com.br\/wp-content\/uploads\/2024\/09\/458610017_1028202582645393_189245099529832247_n.jpg\",\"datePublished\":\"2024-09-06T01:50:14+00:00\",\"dateModified\":\"2024-09-06T01:50:15+00:00\",\"author\":{\"@id\":\"https:\/\/www.chavantesnoticia.com.br\/#\/schema\/person\/a69fe620bb8c33be96bb2c9fd01df858\"},\"breadcrumb\":{\"@id\":\"https:\/\/www.chavantesnoticia.com.br\/?p=68458#breadcrumb\"},\"inLanguage\":\"pt-BR\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/www.chavantesnoticia.com.br\/?p=68458\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"pt-BR\",\"@id\":\"https:\/\/www.chavantesnoticia.com.br\/?p=68458#primaryimage\",\"url\":\"https:\/\/www.chavantesnoticia.com.br\/wp-content\/uploads\/2024\/09\/458610017_1028202582645393_189245099529832247_n.jpg\",\"contentUrl\":\"https:\/\/www.chavantesnoticia.com.br\/wp-content\/uploads\/2024\/09\/458610017_1028202582645393_189245099529832247_n.jpg\",\"width\":392,\"height\":377},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/www.chavantesnoticia.com.br\/?p=68458#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"In\u00edcio\",\"item\":\"https:\/\/www.chavantesnoticia.com.br\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"LAMENT\u00c1VEL DECIS\u00c3O DO STF IMPEDE QUE CRIAN\u00c7A TENHA ACESSO A REM\u00c9DIO DE R$17 MILH\u00d5ES\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/www.chavantesnoticia.com.br\/#website\",\"url\":\"https:\/\/www.chavantesnoticia.com.br\/\",\"name\":\"Chavantes Not\u00edcia\",\"description\":\"Ve\u00edculo de comunica\u00e7\u00e3o virtual &#x1f4bb;&#x1f4f1;\",\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/www.chavantesnoticia.com.br\/?s={search_term_string}\"},\"query-input\":\"required name=search_term_string\"}],\"inLanguage\":\"pt-BR\"},{\"@type\":\"Person\",\"@id\":\"https:\/\/www.chavantesnoticia.com.br\/#\/schema\/person\/a69fe620bb8c33be96bb2c9fd01df858\",\"name\":\"Chavantes Not\u00edcia\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"pt-BR\",\"@id\":\"https:\/\/www.chavantesnoticia.com.br\/#\/schema\/person\/image\/\",\"url\":\"https:\/\/secure.gravatar.com\/avatar\/1e9761a3f9190864264576922bf6dda6?s=96&d=mm&r=g\",\"contentUrl\":\"https:\/\/secure.gravatar.com\/avatar\/1e9761a3f9190864264576922bf6dda6?s=96&d=mm&r=g\",\"caption\":\"Chavantes Not\u00edcia\"},\"description\":\"O Chavantes Not\u00edcia destina-se a prestar informa\u00e7\u00f5es \u00e0 popula\u00e7\u00e3o sobre os acontecimentos em nossa regi\u00e3o.\",\"sameAs\":[\"https:\/\/www.chavantesnoticia.com.br\"],\"url\":\"https:\/\/www.chavantesnoticia.com.br\/?author=1\"}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"LAMENT\u00c1VEL DECIS\u00c3O DO STF IMPEDE QUE CRIAN\u00c7A TENHA ACESSO A REM\u00c9DIO DE R$17 MILH\u00d5ES - Chavantes Not\u00edcia","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/www.chavantesnoticia.com.br\/?p=68458","og_locale":"pt_BR","og_type":"article","og_title":"LAMENT\u00c1VEL DECIS\u00c3O DO STF IMPEDE QUE CRIAN\u00c7A TENHA ACESSO A REM\u00c9DIO DE R$17 MILH\u00d5ES - Chavantes Not\u00edcia","og_description":"J\u00e1 estava tudo certo para Lorenzo Arag\u00e3o, de 4 anos, receber a dose \u00fanica de Elevidys, medicamento que","og_url":"https:\/\/www.chavantesnoticia.com.br\/?p=68458","og_site_name":"Chavantes Not\u00edcia","article_published_time":"2024-09-06T01:50:14+00:00","article_modified_time":"2024-09-06T01:50:15+00:00","og_image":[{"width":392,"height":377,"url":"https:\/\/www.chavantesnoticia.com.br\/wp-content\/uploads\/2024\/09\/458610017_1028202582645393_189245099529832247_n.jpg","type":"image\/jpeg"}],"author":"Chavantes Not\u00edcia","twitter_card":"summary_large_image","twitter_misc":{"Escrito por":"Chavantes Not\u00edcia","Est. tempo de leitura":"2 minutos"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"WebPage","@id":"https:\/\/www.chavantesnoticia.com.br\/?p=68458","url":"https:\/\/www.chavantesnoticia.com.br\/?p=68458","name":"LAMENT\u00c1VEL DECIS\u00c3O DO STF IMPEDE QUE CRIAN\u00c7A TENHA ACESSO A REM\u00c9DIO DE R$17 MILH\u00d5ES - Chavantes Not\u00edcia","isPartOf":{"@id":"https:\/\/www.chavantesnoticia.com.br\/#website"},"primaryImageOfPage":{"@id":"https:\/\/www.chavantesnoticia.com.br\/?p=68458#primaryimage"},"image":{"@id":"https:\/\/www.chavantesnoticia.com.br\/?p=68458#primaryimage"},"thumbnailUrl":"https:\/\/www.chavantesnoticia.com.br\/wp-content\/uploads\/2024\/09\/458610017_1028202582645393_189245099529832247_n.jpg","datePublished":"2024-09-06T01:50:14+00:00","dateModified":"2024-09-06T01:50:15+00:00","author":{"@id":"https:\/\/www.chavantesnoticia.com.br\/#\/schema\/person\/a69fe620bb8c33be96bb2c9fd01df858"},"breadcrumb":{"@id":"https:\/\/www.chavantesnoticia.com.br\/?p=68458#breadcrumb"},"inLanguage":"pt-BR","potentialAction":[{"@type":"ReadAction","target":["https:\/\/www.chavantesnoticia.com.br\/?p=68458"]}]},{"@type":"ImageObject","inLanguage":"pt-BR","@id":"https:\/\/www.chavantesnoticia.com.br\/?p=68458#primaryimage","url":"https:\/\/www.chavantesnoticia.com.br\/wp-content\/uploads\/2024\/09\/458610017_1028202582645393_189245099529832247_n.jpg","contentUrl":"https:\/\/www.chavantesnoticia.com.br\/wp-content\/uploads\/2024\/09\/458610017_1028202582645393_189245099529832247_n.jpg","width":392,"height":377},{"@type":"BreadcrumbList","@id":"https:\/\/www.chavantesnoticia.com.br\/?p=68458#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"In\u00edcio","item":"https:\/\/www.chavantesnoticia.com.br\/"},{"@type":"ListItem","position":2,"name":"LAMENT\u00c1VEL DECIS\u00c3O DO STF IMPEDE QUE CRIAN\u00c7A TENHA ACESSO A REM\u00c9DIO DE R$17 MILH\u00d5ES"}]},{"@type":"WebSite","@id":"https:\/\/www.chavantesnoticia.com.br\/#website","url":"https:\/\/www.chavantesnoticia.com.br\/","name":"Chavantes Not\u00edcia","description":"Ve\u00edculo de comunica\u00e7\u00e3o virtual &#x1f4bb;&#x1f4f1;","potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/www.chavantesnoticia.com.br\/?s={search_term_string}"},"query-input":"required name=search_term_string"}],"inLanguage":"pt-BR"},{"@type":"Person","@id":"https:\/\/www.chavantesnoticia.com.br\/#\/schema\/person\/a69fe620bb8c33be96bb2c9fd01df858","name":"Chavantes Not\u00edcia","image":{"@type":"ImageObject","inLanguage":"pt-BR","@id":"https:\/\/www.chavantesnoticia.com.br\/#\/schema\/person\/image\/","url":"https:\/\/secure.gravatar.com\/avatar\/1e9761a3f9190864264576922bf6dda6?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/1e9761a3f9190864264576922bf6dda6?s=96&d=mm&r=g","caption":"Chavantes Not\u00edcia"},"description":"O Chavantes Not\u00edcia destina-se a prestar informa\u00e7\u00f5es \u00e0 popula\u00e7\u00e3o sobre os acontecimentos em nossa regi\u00e3o.","sameAs":["https:\/\/www.chavantesnoticia.com.br"],"url":"https:\/\/www.chavantesnoticia.com.br\/?author=1"}]}},"_links":{"self":[{"href":"https:\/\/www.chavantesnoticia.com.br\/index.php?rest_route=\/wp\/v2\/posts\/68458"}],"collection":[{"href":"https:\/\/www.chavantesnoticia.com.br\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.chavantesnoticia.com.br\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.chavantesnoticia.com.br\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.chavantesnoticia.com.br\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=68458"}],"version-history":[{"count":1,"href":"https:\/\/www.chavantesnoticia.com.br\/index.php?rest_route=\/wp\/v2\/posts\/68458\/revisions"}],"predecessor-version":[{"id":68460,"href":"https:\/\/www.chavantesnoticia.com.br\/index.php?rest_route=\/wp\/v2\/posts\/68458\/revisions\/68460"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.chavantesnoticia.com.br\/index.php?rest_route=\/wp\/v2\/media\/68459"}],"wp:attachment":[{"href":"https:\/\/www.chavantesnoticia.com.br\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=68458"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.chavantesnoticia.com.br\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=68458"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.chavantesnoticia.com.br\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=68458"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}